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We just got a dementia diagnosis

What to do in the first month, and what can wait longer than you think.

Quick answer

What to do in the first month, and what can wait longer than you think.

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Home›By Situation›We just got a dementia diagnosis

The first month after a diagnosis is mostly about slowing down. Very little has to be decided immediately.

Short answer

What to do in the first month, and what can wait longer than you think.

What to do, in order

  1. Slow down. Very little has to be decided this month.
  2. Get the specific diagnosis. Alzheimer's, vascular dementia, Lewy body and frontotemporal dementia progress differently and respond differently to medication.
  3. Do the legal work now, while capacity is clear. Power of attorney, medical power of attorney, directives.
  4. Call the Area Agency on Aging serving your county. Trellis covers the entire Twin Cities metro -- reach it through the Senior LinkAge Line at 1-800-333-2433.
  5. Understand what memory care will require later. Minnesota requires a distinct MDH license -- assisted living facility with dementia care -- not just a disclosure, for any community with a secured dementia unit.

Questions families ask

My parent's money is running out — what are our options in Minnesota?

The Elderly Waiver (for those already Medical Assistance eligible) and Alternative Care (a state-funded bridge program for those not yet eligible) are Minnesota's two main HCBS programs for seniors approaching or facing a financial shortfall, both covering care services but not room and board. No confirmed waitlist status for either program was found in this research — check current availability with DHS or a county human services agency.

My spouse needs more care than I can provide at home — how do I protect our finances?

Minnesota's Community Spouse Asset Allowance (Minn. Stat. 256B.059) lets a healthy spouse protect between roughly $32,532 and $162,660 in assets, plus a Minimum Monthly Maintenance Needs Allowance of income between about $2,705 and $4,066.50 per month, when a spouse enters Medicaid-covered long-term care — figures that should be reconfirmed for the current year with a county financial worker or elder-law attorney.

My parent fell and can no longer live alone — what should we do first?

Start with a call to the Senior LinkAge Line (1-800-333-2433) to request a MnCHOICES assessment, which determines whether a nursing-facility level of care is needed and opens the door to Elderly Waiver-funded in-home services, adult foster care, or licensed assisted living, depending on the assessed level of need and the family's preference.

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